As requested, here is my argumentative paper. I was taking the con side of aggressive resuscitation of 24 weekers when there are scarce resources available. (PS - I received 100% on this!)
Copyright - AtYourCervix, 2009
Resuscitation of Extremely Premature Infants at 24 Weeks Gestation When Medical Resources are Scarce
In the United States, great advances have been made over the years in medical technology and the advancement of many areas of health care. However, one area that continues to have a poor outcome is the infant mortality rate: there are 40 countries that have better infant mortality rates than the United States (Central Intelligence Agency, 2008). The aggressive nature of resuscitating extremely premature infants at or before 24 weeks gestation could very well be one reason for the poor ranking among the other countries in the world (CDC, 2008). Medical resources to resuscitate such extremely premature infants are not found at every hospital, healthcare facility, birth center or clinic. Long term prognosis at 24 weeks gestation is poor. Depending on the availability of medical and financial resources, the prognoses for positive outcomes for such infants are dismal and likely non-existent. It is more compassionate and humane to provide comfort care only for extremely preterm infants. Thus, infants born at extreme prematurity, before or at 24 weeks gestation, should not be vigorously resuscitated when medical resources are scarce, saving such aggressive measures for infants born at higher gestations.
By definition, neonatal resuscitation is assessment and interventions utilitized after birth to assist a baby with breathing and helping maintain a heartbeat (Wikibooks). Simple methods consist of repositioning the infant, drying of birth fluids, clearing the airway, and keeping the baby warm (American Academy of Pediatrics, 2006). Initial and ongoing assessments include monitoring of the heart rate, respiratory effort, color, muscle tone and grimace reflex (AAP, 2006). More advanced and aggressive measures of resuscitation require medical equipment and include the use of oxygen, bag and mask, endotracheal intubation, gastric and endotracheal suctioning, chest compressions and medications (AAP, 2006). A program used specifically for the training of health care providers world-wide in neonatal resuscitation is the American Heart Association/American Academy of Pediatrics Neonatal Resuscitation Program, also referred to as NRP.
In a facility with a high level neonatal intensive care unit, supplies and resuscitation measures are both available and utilized at births starting from approximately 23-24 weeks gestation. However, not all facilities have the access or ability to be able to resuscitate newborns born extremely preterm or at an extremely low birth weight. Of the 5,708 hospitals registered with the American Hospitals Association in the United States (American Hospitals Association, 2008), there are approximately only 1500 Neonatal Intensive Care units (McGrath, 2007). NICU units are further divided into different levels of care provided: from Level 2, which provides care for mildly ill infants, but does not provide mechanical ventilation, up to Level 3D, which provides a wide range of care up to and including mechanical ventilation and cardiac surgery requiring cardiac bypass or extracorporeal membrane oxygenation (Phibbs et al., 2007).
Infants born at Level 3 NICUs at a gestational age of 24 weeks and an approximate birth weight of 500 grams, have a survival rate at just 28% (NICHD, 2008). This states simply the percentage of infants that survive, and does not take into account those infants that have long term moderate to severe or profound neurodevelopmental impairment. Of the 28% of infants that do survive, those that do not experience moderate to severe neurodevelopmental impairment are estimated to be only 12% (NICHD, 2008). Approximately 88% of surviving infants have some degree of neurodevelopmental impairment. So, for every 100 babies born at 24 weeks gestation, approximately 28 will survive, and only 3 of the original 100 will go on to have no lasting sequelae. These are staggering statistics. Outcomes for infants born at 24 weeks at hospitals and other health care facilities without high level NICU care are even worse. There are no studies or statistics of survival of infants born at non-NICU containing facilities. The assumption that can be inferred is that none of the infants born at about 24 weeks gestation survive.
According to the 2008 World Fact Book, published by the Central Intelligence Agency, the United States currently ranks at number 41 out of 219 countries for infant mortality rates (CIA, 2008). For such a progressive nation with increased technology in the health care field, that speaks volumes for how behind the United States is in caring for its youngest citizens, compared to other developed nations of the world. Infant mortality in the United States worsened slightly from 2000 to 2005, primarily due to the increase in preterm births and its associated mortalities (CDC, 2008). Also, according to the CDC (2008), in 2000, 65.6% of all infant deaths occurred in premature infants. In 2005, that amount increased to 68.6%. With a slowly rising percentage of premature births occurring annually, the mortality rates will continue to increase. If the United States continues to have an increase in both premature births and infant mortality, the current infant mortality ranking among other nations will continue to worsen.
Parents of infants born at extremely preterm gestations may want a full resuscitation done for their infant because of feeling a “glimmer of hope”, even though they know that their child could very well die shortly after birth (Boss, Hutton, Sulpar, West, and Donohue, 2008). Some parents maintain a hope and belief that everything will be fine, regardless of what medical experts might believe the outcome to be (Boss et al., 2008). Still other parents have a strong spiritual or religious belief that “a miracle would happen despite the physicians” (Boss et al., 2008), standing firm in their faith that God will take care of everything. After all, in the previously stated information from the NICHD estimates, 12% of these infants that survive will not have any form of neurodevelopmental disability. Parents may hold on to these positive, albeit miniscule statistics in the hope and belief that their child will be one of the lucky ones to survive without disability. Other parents may not care about the potential for disabilities, as long as their child survives (Kavanaugh, Savage, Kilpatrick, Kimura and Hershberger, 2005).
The startling truth is that approximately 72% of 24 week gestation infants will die (NICHD, 2008). That’s almost 3 out of 4 infants born at 24 weeks in a facility with a Level 3 NICU. Of those that survive, a full 88% will have moderate to severe neurological development impairments (NICHD, 2008). Looking ahead to 26 weeks gestation births, approximately 25% will “have a handicap severe enough to prohibit them from functioning independently” (Maraskas and Parsi, 2008). This is a huge difference in long term outcomes and prognoses, in just a two week gestational period. This in no way devalues the quality of life, but instead paints a bleak developmental outcome and eventual future for infants born at 24 weeks gestation.
Some people may argue that all lives are sacred and special, and everyone deserves a chance, even if that chance at a normal life is very small. While not denying this belief, the scarcity of appropriate medical resources and staffing must also be considered. The resuscitation of a 24 week gestation infant cannot simply occur because the parents want the resuscitation to happen. If the hospital or healthcare facility does not have the basic resuscitation equipment available in the gestational-appropriate sizes, and does not have NRP trained staff to run the resuscitation, then the chances of successfully resuscitating such a small neonate is slim to none.
At the very minimum, a small preemie size bag and mask, as well as the availability of endotracheal intubation equipment is needed to stabilize a 24 week gestation neonate (AAP, 2006). Unless the infant is born at a facility with a NICU, facilities without a NICU will doubtfully have this much needed, size-appropriate equipment. Even if, by chance, a hospital without a NICU has this equipment available, good outcomes demand an appropriately trained NRP certified provider be readily available to run the resuscitation and do the necessary intubation (AAP, 2006). This skill is found in providers who have more exposure to endotracheal intubation on premature infants, such as neonatologists and nurse practitioners employed in high level NICUs.
It is more humane to forgo resuscitation efforts in extremely premature infants when the medical resources are lacking or scarce. Without the appropriate equipment and providers to give care, the prognosis and outcomes for such preterm infants are dismal and likely non-existent. The more humane way of caring for these infants is to provide compassionate comfort care, until the infant passes away (Guyer, 2006). Instead of providers spending futile time on resuscitative efforts and causing the neonate unneeded pain and suffering, parents could hold and talk to their newborn, creating a loving bond that will remain forever in their minds and hearts.
Comfort or palliative care consists of providing a quiet environment for the family and the dying infant, offering emotional support as needed, and remaining sensitive to the needs of the family (Stokowski, 2004). Keeping the baby warm, either wrapped in warm blankets or under a radiant warmer, can help prevent the “diving reflex” from occurring. This happens when the infant is cold stressed, such as being in a cold environment, and leads to a reflexive bradycardia and an increase in peripheral vasoconstriction (Mondofacto, 2000). Other comfort care measures include calling the infant by his or her given name, keeping the infant comfortable, and using a gentle touch when handling the infant (Stokowski, 2004). Keepsake memories are important for the family and include pictures, foot and handprints, foot and hand molds, as well as memory boxes containing infant bracelets, locks of hair, and blankets. Offering spiritual or pastoral care is important as well for the family.
Extremely premature infants face insurmountable odds. This is true even when they are born in a hospital with an appropriate high level NICU. Adding the lack of medical resources into the picture creates an even more dismal image for positive outcomes. Instead, providing compassionate comfort care to these infants is more humane, to help alleviate any suffering without prolonging the inevitability of death. Aggressive resuscitative efforts should be withheld for extremely preterm infants, born at or before 24 weeks gestation, when there is a lack of medical resources available.
(I omited including the resource list, due to the difficulty in the HTML coding with the old cut and paste function from MS office to blogger).
Roll out the Red Carpet. NOT!
5 hours ago


14 comments:
Do you have a link for the NICHD paper? Thanks so much. My google-fu is failing me.
Excellent paper!
I know my heart goes out to a family grieving the expected loss of a very premature infant. So many of them want "everything done", not truly being aware of how traumatic this will be for their baby. They keep asking for percentages, any tiny statistic, to hold on to in hopes that their baby will have even a tiny chance to survive. As a mother whose first baby died from the effects of an operable heart defect with an "iffy" prognosis 20 years ago, I know the pain these families are in; but I know the pain my son was in, too, and I would not want another child to experience that. It is something that can't be described to a dazed family who has just heard the most devastating news of their lives.
Your paper was not only mechanically well formulated, but thoughtfully considered. Your patients who experience loss are truly blessed to have you for their nurse when they are going through such a difficult time.
RedRn
www.redrnmusings.blogspot.com
Your paper is very thought provoking. For two years prior to starting nursing school I worked at our local high school as a special education assistant. The first year I spent one-on-one with a freshman who was born prematurely, with cerebral palsy. She is truly a delightful young girl with many hopes and dreams, and I would never in a million years dispute the value of her life. What I had trouble with is her family life and how she didn't receive the quality of therapeutic efforts to help her gain strength in her legs that I believed she should. One of the first things I learned about her was her goal is to walk across the stage at graduation. She's a junior now and from what I've heard not much is being done to help her accomplish her goal. I know for a fact the work I had done with her, per her PT, in particular her leg strengthening exercises was negated over the summer, following her freshman year, with little to no activity.
I lean more toward the try-and-save-all-at-all-costs mentality, but that's the idealist in me. I do see the validity of your argument though.
(Sorry if this is a double-post, but I think the first comment went into the ether.)
This was a very interesting article, but I wondered what research has been done into "kangaroo care" for these very pre-term babies. I've just read a little bit about it (such as this article written by a mom of a 24-weeker who survived, although it doesn't say whether or not the child has any long-term negative sequelae) and there seems to be so many positives to it -- decrease in mortality, increase in oxygen saturation, better heart-rate, etc.
-Kathy
As a nursing student working in the NICU at a world class children's hospital this semester, I have been shocked at the effects of resuscitation of micro-preemies. Our hospital has preemies as small as 22 weeks. While I agree with the problem of limited resources, no where else does our health care system seem to take that into account when providing care so why should preemies be subject to it? My issue is that even if your baby is one of the 18% that survive and one of the even smaller numbers that have no sequela, parents have no idea what kind of torture they are signing their baby up for when they say do every thing. Nurses try to be as gentle as possible obviously but nearly every moment of these babies existance is taken up by painful disruptive treatments that keep them alive. It is cruel and in any other population it would not be tolerated. I think parents need to be made aware of resuscitation decisions during pregnancy when they can think clearly and when they can understand what is at stake just in case they are faced with that decision later. And, I think physicians need to be brutally honest about the chances, about what will happen to the baby in the months that it will take to get to the miniscule survival odds, and they need to be assured that deciding not to resuscitate is a perfectly reasonable and loving option. On the other hand, I do wonder, if we didn't have 28 weekers to experiment on/ resuscitate 15 years ago where would those 28 weekers that have pretty good odds be today?
This was a very well written post with accurate references. I have been a NICU nurse for 16 years now, and have worked at both Level III NICUs and at community hospitals with limited resources. I take offense to the comment that NICU's "torture" micro preemies, or any other infants. We may as well not give chemo to cancer patients, because that is surely torture too. NICU's have come a long way in providing developmental and compassionate care to our smallest patients. So, ease up on the "torture" and "experimenting" comments. One thing I wish was added to the "comfort care" of the extreme premature infant, was a bit on palliative care. This seems to be the new wave in NICU care. I have seen 22-23 weekers live for days just being held by their mothers. It is very stressful and traumatic for families to see a gasping infant, no matter how small. Studies are being done to see if infants who are not compatible with life, or are beyond the age of viability, could benefit from analgesics during their last hours of life.
I am the mother of a surviving triplet who was born at 24 weeks. If I would have stopped care as the doctors suggested I would not have my happy little miracle baby who is almost a year old and doing great! As for the comments made about torture. There are children undergoing painful treatments for cancer every day and I don't hear anyone saying just to let them die! As far as NICU staff goes, most were wonderful. Then there were those who acted angry at having to save my baby. I had rude comments made to me by nurses about "people treating their animals better" and was put under a lot of pressure from Doctors, until I finally put my foot down. What I am trying to say is that NICU staff needs to treat families with respect no matter what they decide, after all it is not your child. Maybe if you put yourself in their shoes, what if it were your child in the NICU? Or what if it were your child facing months maybe even years of pain and cancer treatments? Would you still feel the same way? If you don't want to save babies then maybe you shouldn't be working in a NICU. One thing is obvious these tiny babies fight hard for their lives. I held one of my boy's as he died and watched him gasp for breath, he died fighting. I will never forget this as long as I live.
Please be kind and watch what you say, you never know who may be reading your words!
I wasn't attacking your paper I am a college student myself and I did understand what you were saying. My problem was with some of the comments made, especially the one that said parents were agreeing to the "torture" of their infants. I did not agree with that at all. There are a lot of medical treatments today that are painful, and they are being done on children every day to keep them alive.
Great post!
Amen!
Great work. You certainly didn't shy away from controversy by tackling this tough issue.
There is one more thing that I think would be particularly relevant to this scenario. If you're able to stabilize, you would have to transfer these kiddos somehow.
Postnatal ambulance transfer is a significant risk factor for intraventricular hemorrhage. After spending a few years in the back of an ambulance, I'm surprised that any micropreemie could endure even a short trip with less than a grade IV bleed.
My apologies dprivett - I did not mean to come across to you in that manner. :-)
I am the mother of a child that was born at exactly 24 weeks. Your paper was very well written.
As for the comments that are being made, everyone has their own opinion. I totally agree that what these tiny preemies go through is horrible. And using torture as a word may be strong to some, but I agree. The procedures that they go through would be enough for some adults, nevermind their tiny bodies.
I can also say though, at the time of birth we as moms are not thinking any of this. We are thinking about our baby living or dying. I look back now and feel extremely guilty for what my son had to go through.
At the same time, he is severely disabled yet he is the light of my life. I cannot imagine life without him. He has changed me as a person for the better. He has changed so many others as well.
It is a hard topic. And an even harder decision as a mom to make. I left it in Gods hands.
mom2threepks, I hope you are not planning on continuing work in the NICU as a career. Your attitude about this subject is grossly cavalier and appalling. When I was forced to deliver my twins more than 3 months early, the doctors QUITE clearly laid out what the boys were going to endure. I KNOW there was pain - I saw it in their little micro-premature faces! Do you think I didn't cry daily because of it? I wasn't selfish, I was their mother. The good thing is that I get to kiss those beautiful faces every night now because I made the right decision. The doctors and nurses get to forget my sons and move on to new micro-preemies. There is no ignorance here...but you are ignorant is so many ways and this saddens me.
Heather
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